Life to be Lived: Challenges and Choices for Patients and Carers in Life-threatening Illnesses

Author: Catherine Proot


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  • ISBN: 9780199685011
  • Author: Catherine Proot
  • Publ Date: 2013-10-03
  • Edition:
  • Pages: 176
  • Imprint: OUP *#
  • Status: ACT
  • ID - 198947

Table of Contents :

PART 1: THE PATIENT EXPERIENCE ; 1. The challenge of illness and pain ; 2. All may not be lost ; 3. Trials and adjustment ; 4. Towards a changed outlook ; PART 2 : THE IMPACT ON FAMILY CARERS ; 5. Demands on the family ; 6. Lives taken over ; 7. Coping with change ; 8. Some personal consequences for the carer ; PART 3: THE PROFESSIONAL CARERS AND THEIR ROLES ; 9. Challenges for the professional carer ; 10. The power and limitations of words ; 11. Talking with patients ; 12. Chaplaincy and spiritual care ; PART 4: BOUNDARIES AND RESOURCES ; 13. Blurred boundaries ; 14. A wealth of resources ; PART 5: THE NEXT STEP ; 15. The next step


How do people face life-limiting illness and death? This challenging question is discussed in-depth in Life to be Lived by looking at the feelings, hopes, fears and stresses associated with life-threatening illnesses, often experienced by patients and their carers. Drawn from research, clinical, and pastoral experiences, the authors examine the process of adjustment that patients and their families go through in major illnesses and when approaching the end of life. Life to be Lived is written in an accessible style using many stories shared by counsellors, chaplains, patients and relatives. Describing the messiness, uncertainties, and paradoxes that are part and parcel of living through an advanced illness, dying, and bereavement, but also what helps and heals, it reviews a range of responses to the challenges to patients and carers and the support, both personal and organisational. Life to be Lived is essential reading for professionals and trained volunteers who work as a part of multidisciplinary teams in palliative and end-of-life care to improve their understanding of the attitudes and behaviour of patients and carers. Families and friends will also benefit from this book as they try to come to terms with their own situations and how they can cope better with them.


This publication offers an inspiring way for people in contemporary society to review death as part of life. David Oliviere, St Christopher's Hospice

Author Biography:

Dr Catherine Proot is a psychology graduate of Ghent University Belgium and holds a counselling diploma and a PhD from the UEA in Norwich. Psychotherapist and clinical supervisor she has specialised in palliative and bereavement care since 2005. She currently works as Psychological Specialist in Palliative Care and Bereavement Coordinator in St Nicholas Hospice Care in Bury St Edmunds, UK.


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